Blog graphic_connected.jpgWelcome to our blog

Our blog is a place where we share stories, videos, and interviews from the House with No Steps family about disability and the world we live in. Jump in and get involved with the conversation to share your own experiences.

Blog

Blog

The incredible life of Lionel Watts

Date Posted: Thursday, 14 September 2017 13:00
Posted By: Nadia Pocock

We thought it was time we brought you up to speed on the story of a man close to our hearts... Lionel Watts.

Lionel Watts as a young man

“When I first became disabled, I looked around and I tried to find my way back into the community. I hadn’t really looked at my reflection and in my own mind I still considered myself as being fairly able, rather than disabled.” - Lionel Watts

Lionel met the love of his life when he was 19

Lionel and Dorothy on their first date

In 1947, Lionel and his mates made a pact to sign up to the Navy.

Unfortunately, when it came to the crunch, Lionel was the only one to go through with it (as what he didn’t know is, he friends’ mothers had forbid them to go).

There was a silver lining though – and it came in the form of a young woman named Dorothy, who Lionel met when he was stationed at Geelong.

After the two met at a dance, they fell in love and went on to marry. He later paid tribute to this enduring love, saying: “Her love and devotion have been my inspiration; for me, she has made it all possible.”

In Lionel’s late 20s, an unexpected illness changed everything

Lionel Watts in hospital

By the age of 28, Lionel was happily living in Narrabeen with his wife Dorothy and young daughters, Nicole and Kerry. He had a successful career as a Junior Executive Manager for GJ Coles, and a very promising future lay ahead. Life was sweet.

One day, Lionel caught what he (and his doctors) thought was the flu, however, they were unfortunately mistaken. Lionel had in fact actually contracted polio, just one year before the vaccination was circulated in Australia.

As a result, Lionel had developed quadriplegia – and spent two whole years in hospital recovering, weighing only 32 kilos.

In Lionel’s day, people were ashamed of disability

Group of people with a disability at a BBQ

While today, disability is something to be embraced, the world was a much harsher place back in the 1960’s.

There was a widespread belief that if someone had a disability, they were being punished by God – which meant families would hide or barely acknowledge family members with a disability.

In Lionel’s words, “restaurants would refuse to have disabled people on the basis that it would upset the other clients. Banks and other services also felt that it would upset other customers to have that so called ‘ugly’ person in their premises."

Lionel wanted to work, but nobody would give him a chance

Lionel Watts with the first members of House with No Steps

When Lionel finally returned home from hospital, he got knocked back time and time again from job after job.

Not only was Lionel marginalised by his community, he was even rejected by rehabilitation centres, who claimed he was “too badly handicapped even to be rehabilitated”.

Quickly, Lionel realised if this was happening to him, it was happening to others too. Refusing to accept this warped view of people with disability, Lionel decided change had to happen – and together with a group of peers, he started the group that would one day become House with No Steps.

Lionel used a deck chair to build one of the first electric wheelchairs

One of the first electric wheelchairs

At the time, Lionel was still finding it hard to get around, so his next goal was to create a chair that he, and others, could use themselves.

Armed with a deckchair, parts purchased from a disposal store, and a little help from his brother and friends, Lionel started the process of designing one of Australia’s first ever electric wheelchairs.

Parking for people with a disability was Lionel’s doing….

International symbol of access

In the 1960 and 70s, travelling around was not easy for people with a disability.

One of Lionel’s friends at the time described Sydney’s Central Station as a ‘disabled person’s chamber of horrors. “I found that I had to go down two flights of steps and up another two. The descent was comparatively easy – I could always fall down if necessary!” he explained.

After hearing about and experiencing these issues himself, now as the chairman of the Architectural Barriers Committee for ACROD (the old name for NDS), Lionel set about campaigning for better wheelchair access for all Australians.

During his time in the position, the committee helped introduce parking permits for people with a disability and made it compulsory for all public buildings, footpaths and crossings to be accessible by wheelchair - a huge leap forward in Australia at the time.

Word of Lionel’s work spread all the way to the White House

Lionel Dorothy and President Nixon

A man of real determination and courage, Lionel was increasingly recognised for all his hard work.

In 1969, President Nixon even invited him to attend the President’s Committee on Rehabilitation in Washington – and over the next eight years, he went on to attend another five similar seminars.

Happily, Lionel wasn’t just heard, he was celebrated too. Not only did he receive an M.B.E. for his contribution to the lives of people with disability, Lionel was also appointed a Companion of the Order of St Michael and St George (CMG) in the Queen’s Birthday Honours for his work in rehabilitation.

Lionel’s legacy lives on today

Lionel Watts portrait

While Lionel sadly passed away in 2000, his legacy will live on forever in the organisation he established - House with No Steps.

To this day, his wife, Dorothy still plays an active role in House with No Steps – attending functions, visiting facilities, and advocating for the rights of people living with a disability. We are proud to have such inspiring founders, and strive to carry on their great work in everything we do.


Read our other blogs

6 suprising facts about Stephen Hawking
8 incredible facts about Helen Keller
7 suprising facts about Louis Braille

Find out more about disability services at House with No Steps.

Tags: famous faces

Never heard of stimming? You probably do it…

Date Posted: Wednesday, 06 September 2017 11:43
Posted By: Nadia Pocock

Never heard of ‘stimming’ before? Don’t worry, we’re here to help explain what this word actually means. Who knows, you may be more familiar with it than you realised…

Boy stimming with fidget spinner

Ever bitten your nails before an interview, jiggled your knee nervously, twirled your hair around your finger, clicked your pen in a meeting, or anxiously paced around a room? Well, these are all examples of ‘stimming’.

Sometimes referred to as self-stimulatory behaviour, stimming is: ‘repetitive or unusual body movement or noise’.

For most people, these ‘stims’ tend to be occasional, and to some degree we’re able to control them (you wouldn’t bite your nails in a job interview would you?).

But, for some people with a disability such as autism, stimming can be harder to control. 

How is stimming different for people with autism?

Stimming is most commonly seen in children and teenagers with autism spectrum disorder. 

While most of us stim from time to time, the biggest difference for people with autism is the type, frequency and obviousness of the behaviour. 

Common stims for people with autism include hand flapping, rocking, flicking or snapping fingers, bouncing or jumping, pacing, head banging, spinning objects, and repeating words.

Some people with autism may stim a lot, others only a little. Some may ‘grow out’ of the behaviour, while others may stim throughout their lives.

We’re not quite sure why people with autism stim

While it’s pretty common, stimming still isn’t fully understood, even by experts. 

It’s believed that people with autism stim for different reasons such as when they are stressed, excited, anxious, or overwhelmed.

Some people may stim because they are oversensitive to their environment – and it is a calming distraction that helps them to focus and reduce sensory overload. Others may stim because they are under sensitive to their environment and are looking to stimulate their ‘underactive’ senses.

Stimming can also be a habit, like whistling when walking down the street. 

Stimming isn’t always a problem 

While sometimes there is a stigma around stimming, it can actually help people with autism manage challenging situations. It’s not necessarily a bad thing. 

On the flipside: if it becomes distracting, creates social problems, causes physical harm to the person or others, or interferes with daily life, then it may need to be managed.  

For example, if a child is absorbed in watching their fingers instead of listening to their teacher, they may be missing out on learning about the lesson or developing their social skills.

For some people as well, stimming can cause injury - such as severe hand-biting or head banging. 

It is possible to manage stimming

If you think that stimming is a cause for concern for you or your child, there are techniques which can help to manage it (although it may not be possible to eliminate altogether).

Often, the first step is to talk to a health professional who can help to understand the reason behind it – remember behaviour such as stimming can be a form of communication.

Once you understand, you can explore different ways to manage it, such as providing alternative forms of stimulation, adjusting environmental factors, reducing anxiety, or increasing physical activity.

‘Stimtoys’ do exist… and you’ve almost certainly encountered one

Heard of the Fidget Spinner? Well, it’s a huge craze that swept into classrooms earlier this year. It’s basically a toy you can stim with it – a device on bearings that you hold between your thumb and finger and when you flick it, it spins for ages. 

Fidget spinners were so popular, that by May this year, they accounted for 17% of all online toy sales.

While it may seem strange that kids would be encouraged to play with toys in class, the reason for this was some people said the Fidget Spinner had the capacity to calm and focus kids who have anxiety, ADHD and autism. 

But do they actually help?

While some parents do report positive effects for their child, anecdotal evidence (people sharing their experiences), is different to scientific evidence (formal studies done by the experts). And so far, there’s no actual scientific evidence to support these marketing claims. 


Read our other blogs

6 facts about sensory hypersensitivity
6 facts you might not know about therapy animals
Facts about being diagnosed with autism as an adult

Find out about disability services at House with No Steps

7 facts about the life of Beethoven

Date Posted: Tuesday, 29 August 2017 11:41
Posted By: Nadia Pocock

Beethoven might be considered one of the greatest composers of all time, but it’s surprising how little many people actually know about him. 

This musical master managed to achieve some remarkable things in his life - including composing his most complex and highly regarded symphony, while deaf.

Find out more about this remarkable man. 

Fact #1. Beethoven’s father pushed him to become a child prodigy

Beethoven as a boy

Beethoven’s Dad (a music teacher), planned all along for Beethoven to be a child prodigy. Born in Germany in 1770, Beethoven was thrown into the world of music from a very young age and made his public performance debut at just 7 (although his Dad told everyone he was 6 to create extra hype). 

Sadly, it wasn’t just encouragement Beethoven got from his Dad – he also regularly received emotional and physical abuse and was forced to practice for days on end.

Legend goes that as a small child, Beethoven was forced to stand on a stool, so he could reach the piano keys and was whipped for any mistakes.

Fact #2. We don’t know what caused Beethoven to lose his hearing

Beethoven as a young man

There are lots of theories flying around about what caused Beethoven to lose his hearing, including syphilis, lead poisoning, and lupus. Some even blamed his habit of dunking his head in cold water when he was tired! 

But the truth is, no one can confirm the cause – what we do know is at 26, he started hearing a ringing and a buzzing in his ears, and things worsened from there. 

Beethoven’s biggest fear was that his lack of hearing would affect his career, so even though he had nearly completely lost his hearing by the time he was 44, he desperately tried to hide this from everyone, even his closest friends.

This caused a big impact on his social life, with Beethoven writing "for two years I have avoided almost all social gatherings because it is impossible for me to say to people 'I am deaf’. "If I belonged to any other profession it would be easier, but in my profession, it is a frightful state."

Fact #3. His hearing loss never stopped him composing

Beethoven as a young man

Even though his hearing was steadily deteriorating, he still managed to compose an opera, six symphonies, four solo concerti, five string quartets, six string sonatas, seven piano sonatas, five sets of piano variations, four overtures, four trios, two sextets, and 72 songs! This flurry of activity still ranks as one of the most productive periods in the life of any musician!
 
Because Beethoven had been immersed in music from such a young age (and because he was a pretty exceptional man) – even after he lost his hearing, he could still ‘hear’ the music in his head. 

His housekeepers also told of how he would sit at his piano with a pencil in his mouth touching the instrument, so he could feel the vibration of the notes while he worked away. 

Fact #4. His hearing loss did impact his music

Beethoven composing

Beethoven’s hearing loss actually did influenced his composition style. 

In his earlier works when he could hear the full range of frequencies, he often used lots of high notes. But as his hearing began to worsen, he could no longer hear these high notes so instead he chose to use lower notes in his compositions which were easier for him to hear. 

But towards the end of his life, the high notes actually returned – this is when he started to let his compositions take shape in his imagination and listen with his ‘inner ear’.

Fact #5. Although he couldn't hear, he insisted on conducting his famous Ninth Symphony

Beethoven

Beethoven’s Ninth Symphony (also one of his most complex pieces) was written when he was almost entirely deaf - but even so, he actually insisted on conducting the first performance of this masterpiece. But, the orchestra actually arranged another conductor, Michael Umlauf to stand beside him and it’s believed Umlauf told the orchestra to ‘ignore Beethoven’ and follow him instead. 

But Beethoven’s enthusiasm was clear to everyone there, with one of the musicians reporting, “he stood in front of the conductor’s stand and threw himself back and forth like a madman. At one moment he stretched to his full height, at the next he crouched down to the floor. He flailed about with his hands and feet as though he wanted to play all the instruments and sing all the chorus parts.”

Fact #6: He couldn’t hear the huge applause at the end of the Ninth Symphony

Beethoven portrait

When the first performance of his Ninth Symphony ended, Beethoven couldn’t hear the thunderous applause, and remained with his back to the crowd. Although the crowd were determined to make him realise how much they loved his symphony with five standing ovations.

Legend has it that a young female singer approached the maestro and turned him around to face the audience, to see the ovation.

Fact #7. There are some wild theories about Beethoven’s final words

Beethoven in 1824

Beethoven died at the age of 56 during a thunderstorm that his friend likened to one of the composer’s great symphonies, saying “crashes that sound like hammering on the portals of Fate”. 

Looking back on his life, Beethoven was plagued with poor health including chronic hepatitis, jaundice, colitis, various skin diseases, rheumatic fever and cirrhosis of the liver – but his actual cause of his death is still unknown.

Like the cause of his death, Beethoven’s final words are also a mystery.

Some report that after receiving a case of wine as a gift, he said “Pity, pity, too late”. Others speculate these words were "Plaudite, amici, comedia finita est" meaning, “applaud, my friends, the comedy is over" and some say his final statement was “I shall hear in heaven”.


Check out our other blogs

7 surprising facts about Louis Braille
8 incredible facts about Helen Keller

6 surprising facts about Stephen Hawking

Find out more about disability services at House with No Steps

Tags: famous faces

Mitchell’s tattoo dream comes true

Date Posted: Monday, 21 August 2017 16:33
Posted By: Nadia Pocock

Mitchell is one of our customers from the Central Coast and he just got his first tattoo! His mum, Robyn, tells us the story...

Mitchell getting his tattoo

For over two years, my 21yr old son Mitchell has been asking for a tattoo, but being his mum I didn’t think this was a good idea.

But one day, one of the support staff at House with No Steps, Ben, came to discuss it with me. At first I dismissed him as I had many others, but Mitchell knew what he wanted, and he and Ben had come up with an 8 step plan for getting the tattoo.

Mitchell and Ben’s plan:

  1. Ben would take Mitchell to the tattoo parlour to look around and chat to the staff
  2. Mitchell would meet with the tattoo artist to talk about what design he would like
  3. Mitchell would watch the artist tattooing another customer (with permission of course)
  4. If Mitchell was still keen, he would visit again to design the tattoo
  5. If Mitchell was not keen after seeing a tattoo being done, then game over (this was the one I was hoping for)
  6. A booking would be made for the sitting, including confirming costs and time
  7. The time, costs and process would be discussed with Mitchell
  8. Mitchel would get a tattoo!

It was a great plan, however, I still had my concerns. What if he got half way through and changed his mind, what if he got scared and ended up with an ugly mark?

So Ben and Mitchell took me to talk to the tattooist about my concerns. The tattooist asked me “did you ask these same questions with your other son?” I did not. So I looked at Mitchell and asked if he was sure, and he said yes.

The booking was made and Mitchell wanted Ben to go with him “cause it’s a man thing.” The appointment took 4 hours and Mitchell did not complain once about the pain.

He now proudly displays his tattoo at every chance and wears a lot of singlets! He is so happy that he’s already designing his next tattoo.

Mitchell and Ben did this together and with respect for everyone concerned. This dream and goal would never have happened without the advocacy for Mitchell’s rights and the Active Support from the House with No Steps team.

Mitchell has achieved one of his dreams, and for that I am grateful to Ben for his perseverance in advocating for Mitchell’s rights.

- Robyn Black


Read our other blogs

"I think it's just awesome to be in love"

Raising a son with Down syndrome means wearing many different hats 

Myths about Down syndrome


Find out more about disability services at House with No Steps

8 facts you need to know about using a wheelchair

Date Posted: Monday, 21 August 2017 16:06
Posted By: Renae Hermanson

When people see someone using a wheelchair, they often tend to jump to conclusions – sometimes without even realising. But like many assumptions, these are often incorrect.

Young man and lady in wheelchair hanging out in the park

To help shed some light and clear up some confusion, we’ve put together 8 facts you need to know about using a wheelchair.

Fact #1. People are not “Wheelchair Bound”

The fact is, wheelchair users aren’t bound to their chair; it’s simply a device that lets them get from A to B. And when you think about it, using a wheelchair is actually quite the opposite of being bound – it is liberating and enabling for the person!

And remember, not all people need to use their chair at all times, so there is no need to be shocked or accuse wheelchair users of ‘faking it’ when they stand up. 

The fact is there are many reasons someone may use a wheelchair periods of time only – many conditions for example can cause chronic pain, fatigue or restrict mobility. It could be that someone has Multiple Sclerosis (MS) for example, and some days they might choose to walk, but on their ‘bad’ days they might choose to use their chair. 

Fact #2. A wheelchair is part of someone’s personal space 

For many people, a wheelchair is an extension of their body and therefore the rules of personal space apply to it as well! 

So, that means… do not rest your feet on it, lean on it or use it as an armchair! This is an invasion of personal space – it’s the same as a stranger coming along and resting their arm on your shoulder. 

Also, the general rule is: don’t ever touch or move someone’s wheelchair without permission from the owner. This even applies if the chair is not currently being used!

Fact #3. Don’t assume someone who uses a wheelchair will need your help

Often people’s sentiment is in the right place when they jump to attention to help someone who uses a wheelchair – but we often see people going overboard to help someone when it’s not actually needed. 

The thing is, many people don’t actually need help and are quite comfy going about their day to day.

But if you do see someone who you think could use a hand, the best thing to do is actually just ask them if they need some help! But if they say no, respect their answer and don’t push the subject. Simple as that!

Fact #4. People who use a wheelchair can have fantastic sex lives

Sex is a natural human desire – and people who use a wheelchair feel no differently about sex than any other person would. 

While some disabilities can make ‘traditional’ sex difficult, many people (even many with spinal cord injuries) can still have full sensation and control ‘down there’.  And what actually is ‘traditional sex’ anyway – sex can be anything including intimacy like kissing, touching and massage. 

Props like wedges, sliding chairs and swings can make sex easier too – and even a wheelchair can be a great tool if you use a little imagination! Where there’s a will, there’s a way! 

If you’re curious you may like to check out our article about sex and disability.

Fact #5. Being in a wheelchair doesn’t mean you can’t shake up the dance floor

Unfortunately, it not uncommon for people to stare or comment when they see someone in a wheelchair at a club, bar or party – but why can’t someone in a wheelchair be shaking up the dance floor if they want to? 

In the words of the late Stella Young: “I am never more aware of my body than I am at around midnight on a Friday. More often than not, I'm on a dance floor, feeling music pulse through my body and moving it accordingly. I'm surrounded by people. They're dancing. I'm dancing.”

“It's my body, and I'll bloody well dance if I want to.” 

Fact #6. A wheelchair user doesn’t just hang out with their ‘carers’

It might sound obvious, but people who use wheelchairs have friends, partners, kids, parents and siblings just like anyone else. So if you see someone with a wheelchair hanging out some of their peeps - don’t assume they’re their carers!

To quote the late Stella Young again, “Quite often these people are hanging out with us because they like to, not because we need looking after. It's annoying when people assume the only reason someone is hanging out with you is because they have to.”

Fact #7. Accessible toilets and parking spots are important

The general story here is simple: accessible facilities such as toilets and parking spots exist because people need them. It’s important to remember that these facilities are often limited too – so just because you don’t want to stand in line or do another lap around the carpark is not an excuse to use them!

In fact – it’s illegal to use an accessible parking space without a permit, and it’s just not chill to use an accessible toilet if you don’t need to.

We’ve written a whole blog about people with invisible disabilities using accessible parking before too, because remember – as long as someone has an appropriate permit, it’s not up to you to judge who can park there!

Fact #8. Yes someone who uses a wheelchair can drive

In many cases, cars actually be modified to allow someone who uses a wheelchair to drive - 
foot pedals can be raised, re-positioned, or even replaced with hand-controlled devices. 

In some vehicles, a wheelchair user can get behind the wheel while still using their chair, thanks to a neat docking device that anchors their chair to the car floor.

While modifications such as these are not possible on all vehicles (and drivers may need to be assessed and trained by an Occupational Therapist before driving), these modifications do mean that for many wheelchair users, they can definitely get behind the wheel!


Check out our other blogs

Sex and disability: the facts
10 things not to say to someone with a disability 
10 things not to say to someone with a mental illness


Find out more about disability services at House with No Steps

6 surprising facts about Stephen Hawking

Date Posted: Thursday, 17 August 2017 12:22
Posted By: Nadia Pocock

World-renowned physicist, cosmologist and author, Stephen Hawking is a man you’ve no doubt heard of before. While his academic achievements are outstanding, there’s another remarkable side to Stephen’s story: his determination. 

We’ve gathered some of the lesser known facts about Stephen’s life, to give you a different insight into this fascinating man.

Stephen Hawking at Nasa in the 1980s

#1. He was a pretty average student at Primary school

Stephen might be considered a genius today, but back in his early school days, he certainly wasn’t top of his class! He was eight before he learnt to read - and at nine, and his grades were among the worst in his class!

However, he was always inquisitive, and his friends and teachers saw his potential early on and gave him the nickname, ‘Einstein’.

Towards the end of high school, Stephen started showing an interest in science and quickly developed an astounding grasp of time and space. 

Now more studious, he set his heart set on going to Oxford University but his parents couldn’t afford the fees. Fortunately he passed the entrance exam with flying colours, scoring an almost perfect score in physics and winning a scholarship. 

Later, Stephen dubbed his first two years of Oxford the most boring of his life, saying he found it ridiculously easy. 

#2. When Stephen was 21, he was told he only had a few years to live

Stephen Hawking

When Stephen came home from graduate school for Christmas at age 21, his family noticed he was often tripping over and was generally clumsier than usual. 

He was taken to a doctor, where they ran tests for over two weeks, and eventually diagnosed him with amyotrophic lateral sclerosis (ALS), also known as motor neurone disease. ALS is a neurological condition that causes people to gradually lose control of their voluntary muscles. 

At just 21, shockingly, doctors told Stephen he only had two years to live. But while Stephen soon had difficulty walking and his speech became almost incomprehensible, his disease progressed more slowly than the doctors had predicted. 

Despite ALS usually being fatal after three years, Stephen has managed to prove the doctor’s diagnosis wrong – and is now in his seventies!

#3. There’s a story behind Stephen losing his speech

Stephen Hawking giving presentation

By the time Stephen was in his thirties, his speech had deteriorated so much that only his family and best friends could understand him. 

Then at 43, he contracted pneumonia and the prognosis looked so bad, Stephen’s doctors asked his wife if they should turn off his life support. 

Although she refused, Stephen’s doctors did need to carry out a tracheotomy to allow him to breathe. This involved cutting an incision into the windpipe, meaning the little speech he had left would be lost. 

#4. He favours the American accent

Stephen Hawking with Obama

Follow the op, Stephen was no longer able to speak and had to raise his eyebrows to communicate different words – that was, until he came across his now famous device called the ‘Equalizer’. 

This device allowed Stephen to press a switch to select phrases, words or letters, and with its help, Stephen could communicate up to 15 words a minute. 

The only slight drawback was the fact that the Equalizer only had one accent: American (and Stephen was very much British). Funnily enough, the accent grew on Stephen, and when the machine was later updated to include other accent options, he chose to stick with his US one, saying "I keep it because I have not heard a voice I like better."

Gradually, Stephen lost the use of his hands but (being ever-determined!), he started operating the voice synthesizer with movements of his cheek at a rate of about 1 word per minute, and he now uses word prediction software (similar to a smartphone) to communicate.  

#5. Stephen’s a man of many talents 

It’s not common for scientists to star on sitcoms but Stephen has – making guest appearances on The Simpsons, Star Trek, and The Big Bang Theory.  Not one to do things in halves, he didn’t end his acting career there, also appearing in the science show, A Brief History of Time, as well as biographical films about his life. 

Stephen’s creative skills aren’t limited to acting, either. In 2007, he also published a children’s book in collaboration with his daughter, Lucy. The book, George’s Secret Key to the Universe, explains pretty heavy concepts like black holes in kids’ terms and was received so well, they followed it up with four sequels. Is there anything Stephen can’t do?! 

#6. At 65, Stephen managed a backflip (yes, literally!)

Thanks to Richard Branson, in 2007 when Stephen was 65 years old, he got to take the trip of a lifetime: heading off to experience zero-gravity. While floating in space, Stephen ditched his chair and even managed to do backflips!

Of course, this being Stephen, he wanted more – and publically declared his ultimate goal: to travel into space. 

Hearing this, Richard Branson has since offered Stephen a ride on the Virgin Galactic space flights – a winged spacecraft specifically designed to carry 'space tourists'. While the ships don't go into orbit – all passengers, including Stephen, would officially be granted official astronaut status once reaching space!


Check out our other blogs

7 surprising facts about Louis Braille
8 incredible facts about Helen Keller
5 amazing people with savant syndrome 


Find out more about disability services at House with No Steps

Tags: famous faces

Understanding addiction: 7 things you need to know

Date Posted: Friday, 04 August 2017 09:00
Posted By: Nadia Pocock

Addiction is one of the most misunderstood conditions around, and one that everyone seems to have an opinion on. There’s also sadly still a stigma surrounding addiction, but we are hoping to improve people's understanding by shedding light on 7 things you need to know.

Addiction support group

Fact #1. There’s a lot more to addiction than ‘substances’

A lot of people think the word ‘addiction’ only applies to drugs, alcohol or smoking. But the truth is, you can develop an addiction to all sorts of things: exercise, sex, food, gambling, shopping, work, online gaming, behavioural patterns, the list goes on and on. 

Addiction is a need to do, take, or use something, to the point where it could be harmful and you’re not in control.

It doesn’t really matter what the person is addicted to, be it alcohol, cigarettes, or prescription drugs. To the person, the effect is what counts, not the substance. 

It’s true that some substances can be more addictive than others, and some are more dangerous than others, but any addiction can cause physical, mental and social damage. It really just depends on the individual; but whatever the case, an addiction should always be taken seriously.

Fact #2. Addiction isn’t something you choose 

Frustratingly there are lots of common misconceptions around this one. 

Often people wonder why people with addiction don’t just stop. They’re not weak-willed nor inherently bad - addiction is a chronic, debilitating and potentially fatal disease which has long been recognised by the WHO (World Health Organisation).

While using a substance or behaving in a certain way may start out voluntarily, with addiction it doesn’t stay that way. 

Once someone has an addiction, they’re certainly no longer making a choice – it has become compulsive. People lose control, no matter the negative consequences - loss of friends, family, jobs, and housing as well as negative physical and mental health effects. 

Another factor to keep in mind is dependency. Sometimes your body becomes used to a substance (such as a drug), and you can become physically reliant, making it a whole lot harder to just quit. In fact with drug use, drugs actually change the brain to foster compulsive drug abuse. 

Fact #3. People with addiction come from all walks of life

Some people think that those with addiction must look a certain way, but the truth is, any stereotypes that people may have in their minds are just not true. 

Sometimes they may discover that a friend, family member or neighbour with a stable career and family, has an addiction to alcohol or drugs. And they're shocked. But addiction can affect anyone – you don’t need to have lived through a rough past, be a certain race or gender, or have a particular lifestyle.

So next time you’re shocked to find out someone has an addiction, remember that there are no simple generalisations that can be made, and like any condition, anyone can develop addiction.

Fact #4. No one factor means someone will develop an addiction

No one factor can predict if a person will develop an addiction, or predict how many times it will take before they become addicted. 

Many factors can contribute including early trauma, family’s beliefs and attitudes, stress, use of substances early in life, and peer pressure.

Once someone has started a certain behaviour or using a substance, the development of this into an addiction can see genetics start to play more of a role in combination with environmental factors. While some people can have a casual drink or play the pokies from time to time, others will find it turns into a destructive habit. 

Fact #5. People with a disability are more likely to have an addiction

It has been found that people with a disability such as depression, PTSD, intellectual disability, spinal cord injury, or ADHD are more likely to have an addiction. 

Sadly, often services for disability and substance abuse don’t overlap; meaning they’re treated by different people at different facilities. So professionals in one field aren’t knowledgeable about the issues in the other field. This can make diagnosis and treatment more difficult. 

Although research has shown that people with a dual diagnosis (disability and addiction) respond well to integrated treatment, this type of treatment is uncommon and difficult to access. 

The good news is, the number of workers trained in dual diagnosis treatment is slowly increasing so we hope to see these overlapping services rolled out more widely. 

Fact #6. You don’t need to hit 'rock bottom' to recover

Have you heard ‘you have to hit rock bottom before you can climb back up’ before? This just isn’t true (what does ‘rock bottom’ even mean?) 

The reality is, everyone has a different lowest point: for some it may mean calling in sick to work, while for others it can mean being in jail. The issue with spreading the ‘rock bottom’ message is it leaves people feeling like they can’t ask for help because things haven’t gotten ‘serious’ enough yet. 

In reality, it’s always better to ask for help sooner rather than later.

Fact #7. Relapse doesn’t equal failure

Addiction is a long-term condition that can include periods of recovery as well as relapse. 
With many conditions, the possibility of relapse is always present. Addiction is no exception.

Sometimes relapse can be seen as a sign that your approach and treatment needs to be adjusted or new supports added, but viewing it as a failure can actually be detrimental – leading to feelings of shame, guilt, and anxiety. 

Just like the condition itself, the recovery plan should also be long-term and most people find the most successful treatments are programs that are created for the long haul, with support available whenever it’s needed.


Where to get support

If you or someone close to you is having trouble with addiction, there are services that can help. We’ve included a few below. You can also consult your doctor, physician, or an addiction specialist about possible treatment options too.

Counselling Online lets you communicate online with a professional counsellor about any alcohol or drug related concern, and it’s available 24hrs a day. 

Gambling Help Online is a 24hr counselling and referral service for people concerned about their own, or someone else's, gambling.

Family Drug Support is for families and friends of people who use drugs or alcohol.

Kids Help Line is available 24 hours a day to children and young people aged 5–25.

Lifeline is a 24 hour crisis support and suicide prevention service.

Alcoholics Anonymous and Narcotics Anonymous – 12 step self help groups where all attendees are fellow alcoholics or addicts

Al-Anon and Nar-Anon – sister groups of AA and NA for family and friends whose lives are affected by the addiction of a loved one


Read our other blogs

Raising awareness of addiction and mental illness - a mother's story
5 things about invisible disabilities you need to know

10 things not to say to someone with a mental illness

Find out more about disability services at House with No Steps

Tags: addiction

8 incredible facts about Helen Keller

Date Posted: Thursday, 13 July 2017 12:50
Posted By: Nadia Pocock

You would all know the story of Helen Keller, the well known writer, political activist and pioneer for people with disability. 

But there’s a lot more to Helen’s story than you’ve probably heard – so we decided to dig a little deeper, and share some lesser known facts about this remarkable woman.

Helen Keller reading braille

Fact #1. A childhood illness took Helen’s sight and hearing.

Helen Keller wasn’t born with a disability, but when she was only 19 months old, she became sick with what the doctors called “an acute congestion of the stomach and the brain”. These days her illness probably would have been labelled Scarlet Fever or Meningitis - both which could now be treated, but back then they often had severe consequences.

A few days after Helen’s fever broke, her Mum noticed she wasn’t responding when the bell was rung for dinner, or when a hand was waved in front of her face.

Soon after, they realised that Helen had lost both her sight and hearing.

Fact #2. Helen was called an ‘unruly child' when she was young.

Helen Keller as a child

When Helen was a a young child, her behaviour had become highly erratic. She was having daily outbursts of emotion; kicking and screaming when she felt angry, and giggling uncontrollably when she was happy. Many of her relatives even thought she be put in an institution

But the truth was, this behaviour really only boiled down to her high level of intelligence, and her frustration at not being able to communicate once she realised other were having conversations she couldn't join.

The desire to be able to speak out became so strong, Helen even created a kind of sign language with her friend Marsha Washington – and by the time she was just seven years old, they’d already made up over 60 signs to communicate to each other.

Fact #3. Helen believed her life started at the age of seven.

Helen Keller as a child with Anne Sullivan

It wasn’t until Helen met her teacher Anne Sullivan (who went on to become her mentor and friend), that she believed her ‘soul was born’. 

Anne showed up in Helen’s life in March 1887, when Helen was seven years old. Only 14 years older than Helen, Anne was also visually impaired and just recently graduated from school. 

Before long, Anne had taught Helen ‘finger spelling’, which allowed her to finally communicate with those around her.

To do this, Anne gave Helen an object such as a doll and traced the word 'd-o-l-l' onto her palm.

At first Helen did not make the connection between the letters on her palm and the objects. But the famous watershed moment came when Anne took Helen to the water pump outside and while spelling “w-a-t-e-r” into Helen’s palm, let water run over the girl’s other hand.  

Quickly, she stopped and touched the earth and demanded its letter name and by nightfall she had learned 30 words.

Fact #4. She called Mark Twain a best mate.

Mark Twain Portrait

Surprising but true! Helen met Mark when she was just 14, when going to Cambridge School for Young Ladies, and they stayed close friends until Mark’s death 16 years later. 

Handily for Helen, Mark smoked 10 to 20 cigars a day, so she could easily recognise her friend from his scent. 

When describing Mark in her autobiography, she wrote, “he treated me not as a freak, but as a handicapped woman seeking a way to circumvent extraordinary difficulties.” 

Fact #5. Helen was the very first person who was deaf and blind to graduate.

Helen Keller Graduating

In 1900 Helen was accepted into the famous Radcliff College in Cambridge (along with her loyal teacher Anne, who attended alongside her to help interpret lectures and texts). 

It was during Helen’s junior year here that she wrote her autobiography, ‘The Story of My Life’. 

By 1904, she had not only written a book, but graduated with a Bachelor of Arts, becoming the first person who was deaf and blind to earn a college degree. 

By the time she went to college, she had also mastered several ways to communicate, including reading by touching people's lips, braille, typing and finger spelling. She had also learned to speak, although she was always unhappy with her voice as it was hard to understand.

Fact #6. Helen was on the FBI’s radar.

Helen Keller and Anne Sullivan

Helen was a true pioneer in her time, and for a woman living in the early 20th century, she was very political and was seen to have some pretty radical ideas. 

She went on to become a world-famous author and speaker, with a particular focus on speaking out for people with disabilities.

But she didn’t stop there – she also focused on social and political issues, tackling a women’s right to vote and use birth control, and was avidly anti-war (something Mark Twain and Helen had in common). Helen also founded the American Civil Liberties Union (ACLU).

She was even investigated by the FBI because of her extreme left views. 

Fact #7. She was forbidden from marrying her fiancé.

Helen Keller holding flower

It’s heart-breaking and hard to understand, but in Helen’s day, society believed that women with disabilities shouldn’t fall in love or experience romance of any kind – let alone get married. 

But when Helen was 36 she fell deeply in love with a man called Peter Fagan, an ex-newspaper reporter who was working as her secretary, and they were secretly engaged. 

They even managed to get a marriage license before Helen’s family caught on and forbid them from going any further because of her disabilities. 

Helen regretted never marrying, sadly saying later “If I could see, I would marry first of all.”

Fact #8. Helen’s teacher died while holding her hand.  

Helen Keller hugging Anne Sullivan

Helen remained close to her beloved teacher Anne for an incredible 49 years. 

In 1936, Anne went into a coma after suffering with coronary thrombosis, and heartbreakingly, she died. Right up until the end Helen was there with her, and was holding onto Helen’s hand when she died. 

Even to this day they’re still by each other’s side – with Helen’s ashes being placed next to Anne’s in 1968, when she died peacefully in her sleep.


Check out our other blogs

7 surprising facts about Louis Braille
6 amazing facts about Stephen Hawking 

7 facts about the life of Beethoven

Find out more about disability services at House with No Steps

Learning my child has a disability

Date Posted: Tuesday, 04 July 2017 09:18
Posted By: Nadia Pocock

When Debra was told her son Tobias had autism, she describes the feeling as having a brain freeze after eating really cold ice cream - but the difference was the feeling didn't go away.

Debra with her sons Tobias and Judah

When Tobias was 2 ½ years old, he had very few words, little eye contact and was still crawling. At the time, I was a new Mum with very little understanding of a child's development or the challenges for families with a member with a disability.   

I recall his first year and realising that yes, something wasn't right. I was frequently comparing the milestones of my niece who was 3 months older, with Tobias.

He was a premmie and so was expected to be delayed somewhat and yet as time passed, the gaps became more obvious and my knowledge of this gap equally so. I could see there was a delay but receiving the autism diagnosis is hard to describe.

I had asked Mum to come to the appointment with the Developmental Paediatrician with me. I expected to hear nothing new. The Paediatrician asked Tobias some very clear questions, all of which he did not take in or respond to;

'Look here Tobias' as he pointed
'What's your name?'

Tobias blankly stared, showing no eye contact with the Doctor yet quite content in his world that day. The Doctor quietly asked me to come and sit down.

'Your son has Autism' he said, and I heard nothing more. I think I tried to engage with him, I'm not entirely sure. He handed me some papers and I could see his mouth moving but didn't hear a thing. I looked down at the information sheet and saw 'Autism is a lifelong disorder'.   

The type of shock experienced by a diagnosis like that is hard to describe. It reminds me of a cold headache, where you swallow a large mouthful of really cold ice cream and your brain freezes.

You can't speak and can only shake your head waiting for it to pass. Your whole body is chilled and frozen for those seconds. Hearing the autism diagnosis was like that... but it didn't go away.

My body is freezing... cold... blank... shaking my head
Please pass
Please pass
Please

I remember biting my lip hard, holding my breath and trying not to let the tears fall in front of this man I didn't know, who had just broken my world. The cold headache had obliterated everything I knew of my child and the tears dripped from my chin. 

I walked out holding Tobias, hoping the secretary didn't see my distress and blindly into the car park with Mum following. She grabbed me and I sobbed into her, both of us clinging onto Tobias. The cold freeze continued and I was silent. I stumbled to the car. Mum took Tobias from me and buckled him into his car seat.

The only way I could work out how to deal with the 'freeze' after that day was to focus on an action. I knew nothing of my current world but could focus on what was ahead. 

I had worked in the Disability Sector with adults with multiple disabilities and I knew exactly what autism could look like. I knew the potential difficulties with communication, the lack of intimate relationships in severe cases, the smearing, the indignity really.

I read that the best support available was Behavioural Therapy and I went to an assessment session with the closest organisation I could find. I didn't contemplate the obstacles. I'm a determined person and I simply didn't care.   

My mother, father, partner and I all trained as therapists and his program began when he was two and a half years old. My second son Judah had just been born and we were doing 15 hours of one on one therapy a week. We were all exhausted but his gains were enormous.   

In many ways it was quite an isolating experience. There was little time for play dates with children we met through other activities... in fact other than extended family there were few other children.

Our lives operated around the start and finish of shifts, rostering, fortnightly team meetings, diverting repetitive behaviours, doctor’s appointments, and consistency in all communication with Tobias.

Our house was filled with a stream of people coming and going and the bills piled up as therapy hit $1000 a week. Most people could simply not relate to this experience.

Most often people would empathise and really listen to what was going on. They walked beside us in the experience which was all I wanted. Other times I would be met with a blank stare and see the pity coming;

'God has chosen you for this'
'You must be a saint'

Blah blah blah

In response I just wanted to scream and prove them wrong. I didn't want this for my children! I didn't want my entire day to revolve around avoiding every day sounds like hairdryers, coffee grinders, vacuums and lawn mowers. I just wanted to be a ‘normal’ mum hanging out with other new mums. Quite frankly, it was really shit.

It was challenging and exhausting but I had never before felt such purpose. I felt a drive and determination to give Tobias the best possible chance. There was no time for self pity. We had up until the age of 5, the critical brain development phase to cover as much ground as possible.

Not long after Tobias’s first diagnosis, he was given his primary diagnosis of Williams Syndrome. This curve ball presented a whole different focus and set of challenges.

People with this diagnosis are described as having a ‘cocktail party personality’ where they will talk to anyone... and I mean anyone. Going to parks were a particular challenge. He would join every party in sight, hug random strangers and even ask to be picked up. At the same time, I have never met so many people in my life!

Our first Williams Syndrome annual picnic was an enlightening experience. I was welcomed from the moment I arrived. There was no hesitation about being approached or shyness in conversation. In fact, when it came time for speeches, people had to line up to take turns. It was refreshing and disarming.

When Tobias turned 5 we were attending interviews for mainstream schooling and it became obvious that he simply wasn't going to fit... yet.

His obsessions with spinning things had continued from the age of 1 and no amount of diverting had resolved it. The pleasure he gained from watching whirly birds on houses or fans was just too strong. This posed safety issues as he would take off to stare at these things whenever they were nearby, regardless of what any teacher said.

Toward the end of the year, Tobias was offered a spot in a private, autism specific school. I was incredibly relieved but sad at the same time. I knew I didn't need to worry for his safety and yet my dreams for Tobias were starting to seem just that. 

Taking him to that school on his first day was such a confronting experience. All these children were doing unusual things; flapping, jumping and repeating things. Some weren't speaking at all and here was my precious child happily amongst them.

There were all sorts of outdoor therapy equipment like trampolines and swings and every door and gate was locked. I had spent over three years trying to support Tobias to fit in to a 'typical' environment. I didn't want to leave him that morning.

My sister had taken my niece to school and was sad about leaving her. The difference was she was doing all the things everyone else was doing. My sister was sad she was growing up. I was grieving that he wasn't ready for life yet.

They call this experience 'Living Grief'. Most other types of grief come after an event; the death of a relationship, or person, or end of a job. It has happened, it is over. Having a child with unique challenges is different. Every day you face the reality that they are struggling. Every day you see the differences between other children and your own. Every single day is a challenge for you and them.

This is not to say that it has been all sadness. That's definitely not the case. There has been so much depth and a lot of beauty, too much beauty really.

I remember Mum calling me one day crying and it took me a while to work out that Tobias had walked three steps during a therapy session! Three steps at 2 1/2 when coaxed with chocolate! The time he started using full words, then two word sentences, then three word sentences. The time he was able to climb a ladder and jump on a trampoline independently. The day he chose his first library book called 'I love chocolate'. All of these skills were hard won. They were broken into minuscule steps and he worked every step of the way for years, trying his hardest to bludge where possible, his funny little personality shining through.

In many ways I feel lucky, I really do. We have this completely accepting and supportive family, an extended network of Williams Syndrome families who understand the challenges, my second son Judah learning at a speed which amazes me, access to doctors who are the best in the world at what they do, as much food as I need, and a roof over my head.

There is still sadness in me but overwhelmingly I see this beautiful, individual, social, naughty, tantruming, nose picking, affectionate little boy and I adore him for who he is.

- Debra


Check out our other blogs

Myths about autism
4 things that don't cause autism
Raising my son who has autism and ADHD

Find out more about disability services at House with No Steps

TV characters putting disability into the spotlight

Date Posted: Friday, 12 May 2017 10:31
Posted By: Nadia Pocock

We all love a TV binge, but sadly we don’t often see characters with a disability on our favourite shows. The good news is, we've tracked down four new TV shows who do have characters with disabilities in their storylines. 

Woman watching TV

While 20% of the population has a disability the sad truth is, we don’t often see characters with a disability in our favourite shows. Even when TV shows do feature a character with a disability, 95% of time they’re played by an able bodied actor – pretty unfair huh?

On a more positive note, a handful of high-profile TV shows have recently started doing their bit to reduce this Hollywood stigma by introducing characters with disability into their storylines. 

Let’s take a look at four of these characters, and where you can check them out for yourself.

JJ DiMeo, Speechless (Channel 11) 

Starring Minnie Driver as Maya DiMeo, a mum on a mission, Speechless revolves around the DiMeo family and particularly the life of JJ – a non-verbal teenager who’s living with cerebral palsy. 

What’s great about this series is JJ is played by an actor who also has cerebral palsy, Micah Fowler. 

JJ communicates by wearing headgear with a laser, which he uses to point to letters and numbers on a board, while others read aloud what he writes.  And with a biting sense of humour, he has plenty to say!

You might chuckle along at Speechless but there are some important messages in this comedy. Firstly, audiences can relate to him, and that is powerful. 

This also isn’t a show about a “disabled” kid. It's a show about a kid and how he manoeuvres life – he goes to school, goes on dates, hopes to become one of the popular kids, gets drunk, goes to parties, and is always cracking a joke.

Watch episodes of Speechless on channel 11.

Julia: Sesame Street (ABC)

This much-loved classic kids’ TV show has been breaking ground over its 48 year run - and that’s not slowing down anytime soon with the introduction of a new character with autism, a muppet named Julia.

A huge amount of work went into making sure Julia portrayed autism accurately, right down to her facial expressions and movements. This wasn’t easy though – as writer Christine Ferraro said "it’s tricky because autism is not one thing, because it’s different for every single person who has autism".

The best thing about Julia? She’s helping kids to understand what autism looks like, and how to make all kids feel included. 

In one scene, Big Bird is introduced to Julia and she completely ignores him, so Elmo kindly explains to Big Bird that sometimes it can take Julia a little longer to do things. In another, Julia gets overexcited and starts wildly jumping up and down – but instead of judging her, this is turned into a game. 

Julia will appear in Sesame Street’s 47th season, making her debut in a special Meet Julia episode which has already aired in the US on April 10. The episode is expected to air via the ABC in Australia within the year – in the meantime, check her out above.

Dustin: Stranger Things (Netflix)

Netflix’s spooky smash hit, Stranger Things, is a throwback to the 1980s which uncovers the mysteries of a small town when a young boy vanishes into thin air.

While this smash hit doesn’t focus specifically on disability, it’s noteworthy because one cast member has a disability in the show and also in real life – one he isn’t shy of talking about. 

Gaten Matarazzo, who plays the loveable Dustin, was born with cleidocranial dysplasia: a condition that affects the growth of the bones and teeth. While Gaten’s case is considered mild, he was born without collarbones, has had many surgeries, and still has his baby teeth which causes him to speak with a lisp.

Yet, the Duffer brothers, who created “Stranger Things,” decided to embrace Gaten’s cleidocranial dysplasia and gave the funny and lovable Dustin the same condition. Although it's written into his character, his disability does not define Dustin at all, and the show's creators choose to leave it largely unexplained. 

The great thing about Gaten is he is using his public profile as an opportunity to speak out about his disability. In his words, “I just want to raise awareness for it and let people know that it’s not something that you should be afraid of showing.” 

You can check out season 1 on Netflix now - but we're already hanging out for season 2 which is set to be released October 31 2017.

Sam: Atypical (Netflix) 

It may not have been released yet, but Atypical is a new Netflix comedy that’s already causing a stir. 

Although the specifics of the plotline haven’t been released just yet, this new show will follow Sam, an 18yr old who has autism. Based around the idea of what it means to be ‘normal’, this coming-of-age’ series will tackle issues of love, independence, and self discovery.  

At this stage it doesn’t look like any of the actors have autism themselves which is disappointing, but Netflix tells us Atypical will give viewers a funny (and sometimes painful) glimpse inside all the dramas that come with growing up – but as seen through the lens of someone with autism.

Production is still in the works but keep an eye out for it later this year.

We’d love to hear your thoughts on shows you’ve seen (especially any we might not have heard about!). Write them in the comments section below!


Read our other blogs

"Run Forest Run!": Disability stereotypes in the media
Online trolls targeting people with a disability

Facts about being diagnosed with autism as an adult


Find out more about disability services at House with No Steps

 

Tags: TV media

7 surprising facts about Louis Braille

Date Posted: Thursday, 13 April 2017 12:25
Posted By: Nadia Pocock

Did you know that the inventor of braille was a 15 year old boy? Find out more about the amazing story of Louis Braille, and how this tactile writing system came to be.

Portrait of Louis Braille

Every now and then someone really special comes along who changes the world in a major way.

Louis Braille was one of these rare people – he didn’t just revolutionise the way things had always been done, he seriously improved the quality of life of a large group of people. 

Not many people know much about how braille was created, or Louis Braille’s story. Read on and we’ll fill you in on this amazing tale.  

#1. Louis wasn’t born blind.

Louis Braille bust with leathering equipment[3]: Exhibit of leathering tools including an awl.

On 4 January 1809, Louis Braille was born to a middle class family in a small town near Paris.

His father was a leatherer and Louis enjoyed playing in his workshop, imitating his Dad. This is exactly what he was doing at three years of age, when a horrific accident took place. 

Louis had been squinting closely at a piece of leather he was trying to pierce with an awl. Pressing hard into this leather, the tool slipped and went straight into one of his eyes. 

Now, this is only the nineteenth century and medicine (as we know it) wasn’t invented yet, so Louis was rushed to the local healer who bandaged it up until a surgeon could look at it the next day. But an infection set in, which soon spread to his other eye and by the age of five, he was blind. 

Losing your sight is hard to comprehend at any age, and Louis, not really grasping the concept at such a young age, kept asking "why it was always dark?". 

#2. Louis didn’t come from a privileged upbringing.

Birth place of Louis Braille[1]: Louis Braille's house

In the 1800s, it was thought if you were blind, you were helpless - and a large proportion of people ended up begging for their livelihood. 

Only those people who were born into very wealthy families were generally able to afford an education – and while Louis’ Dad had a successful leather business, with three other children to feed, purse strings were tight.

Although Louis parents were far from rich, they were determined that their son would have the same opportunities as their other kids, and he was sent to the local school where his only option was to learn through listening. 

Luckily, when Louis was nine, a noblewomen heard of his story and was so moved she pleaded with the Royal Institute for the Blind school in Paris to take him on as a student. Soon after, good news was received – Louis had been accepted into the first school in the world for blind and visually impaired students. 

#3. Louis’ school used to be a jail. 

Royal institute for the blind[2]: The Royal Institute for the Blind in Paris.

The Royal Institute for the Blind may have been a world first, but the facilities were anything but state-of-the-art – the school was run from a damp, dark, dilapidated old jail. 

Food was scarce, showers were only available once a month and there were lots of rules, enforced with harsh punishments. 

But, for Louis it wasn’t all bad – he was able to learn a variety of new subjects (like grammar, music and science), and also was able to get hold of what he had wanted for so long - books. 

#4: Louis learnt to read by tracing giant letters

At the Royal Institute for the Blind, Louis learned to read by tracing the pages of special books. The books were something of a letdown, though – the text was so big (so students could trace the letters with their fingers), and each sentence took up a whole page, which meant some seriously short stories. A far cry from Harry Potter!

It wasn’t enough for Louis to read, he also wanted to write! So, he set about getting his hands on an alphabet made from bits of thick leather. It was a slow and fiddly process, but he could at least trace the letters' outlines and write his first sentences. 

#5. Louis’ inspiration came from a retired soldier.

While paying a visit to Louis’ school, a retired French army captain, Charles Barbier,  introduced the students to a system of writing – one he’d created to allow soldiers to communicate silently with each other without needing light (which would give them away to the enemy).

This system used a code made from dots and dashes that had been punched into heavy paper with a sharp tool (ironically similar to the awl Louis hurt his eye with). 

While his method had never taken off in the army (soldiers found it too complicated), it gave Louis just the inspiration he needed.

Seeing this code as his ticket to finally being able to read and write, Louis fully embraced this new language, and set to work creating a better system.

#6. Louis invented the braille language system when he was only 15.

Book in braille[4]: Book written in braille at the museum of Louis Braille.

Over a two year period, Louis worked hard on his new system, after many late nights, and at the tender age of 15, he finally cracked the code! 

To put his new system to the test and show his school how it worked, he asked the headmaster to read out an article from a newspaper. As the words were read out, Louis recorded each word using his Braille system and then repeated it, word-for-word back to the headmaster – proving he’d been successful in creating a new reading and writing system for the blind. 

#7. Louis died before he could see the true impact of his invention.

Child reading Braille

By the time Louis was 19 years old, he was teaching full time at the Royal Institute for the Blind – but he still hadn’t convinced the school to introduce his new language system. 

While the school’s director admired and respected Louis, he was worried that the braille system would allow blind students to become ‘too independent’, and no longer need their teachers.

Sadly, Louis died at just forty-three, after a long battle with a respiratory condition (believed to be tuberculosis). Just two years later in 1854, his language system was finally adopted by the Royal Institute for the Blind, thanks to overwhelming demand from students. 

From there, braille spread through the rest of the word – and in 1878, the World Congress for the Blind voted to make it the international system for the blind. Now, Braille has now been taken up by almost every language worldwide. 

It’s amazing to think that so many lives have been impacted by the work of a teenager – and it goes to show what can happen when imagination meets perseverance!


Check out our other blogs

5 things about invisible disabilities you need to know

The disability parking debate

6 facts you might not know about therapy animals

Find out more about disability services at House with No Steps


[1]: By Kou07kou (Own work) [GFDL (http://www.gnu.org/copyleft/fdl.html) or CC BY-SA 3.0 (http://creativecommons.org/licenses/by-sa/3.0)], via Wikimedia Commons
[2]: By Ralf.treinen (Own work) [CC BY-SA 3.0 (http://creativecommons.org/licenses/by-sa/3.0)], via Wikimedia Commons
[3]: By Kou07kou (Own work) [GFDL (http://www.gnu.org/copyleft/fdl.html) or CC BY-SA 3.0 (http://creativecommons.org/licenses/by-sa/3.0)], via Wikimedia Commons
[4]: By Kou07kou (Own work) [GFDL (http://www.gnu.org/copyleft/fdl.html) or CC BY-SA 3.0 (http://creativecommons.org/licenses/by-sa/3.0)], via Wikimedia Commons

 

Five good reasons to hire someone with a disability

Date Posted: Friday, 24 March 2017 09:33
Posted By: Nadia Pocock

These days, more and more people with disabilities are joining the Australian workforce. But while many businesses are recognising the value of a diverse workforce, we still have a long way to go. 

Girl with a disability at work

Did you know that people with a disability are still almost twice as likely to be unemployed (with an unemployment rate of 10% compared to 5.3%)? And for people with a mental illness or intellectual disability, the numbers are even higher with over 20% of people being unemployed.

So why should companies consider hiring people with disabilities? Let’s take a look at a few reasons why they can make a great addition to the team.

#1: They can be counted on.

Strangely, not coming into work is one of the main reasons employers worry about hiring someone with a disability – but when you look at average attendance figures, it’s quite the reverse! 

One study found that people with disabilities are actually nearly 40% less likely to take sick leave or time off compared to other workers!

Not only that, employees with disabilities often stay with a company longer. In fact, one study of a call centre found that their employees with disabilities stayed in their jobs an average of 4.1 years, while those without disabilities only stuck around for 3.2 years. 

And for those who think people with disabilities are more prone to injuries – the truth is, they actually have fewer compensation injuries and accidents at work.

For employers, this not only means a more stable workforce – with fewer people coming and going – it means financial savings too.

#2: They see things differently.

Despite common misconceptions, people with disabilities perform just as well as any other employee once they’re in the right job. 

Many employers also find that workers with disabilities are among their most productive, and bring something extra to the table too – whether it’s a different perspective, a lateral approach to problem solving, or a different set of life experiences. 

This should really come as no surprise, though, right? After all, they’re often highly skilled at adapting to new or difficult situations.

And when companies are diverse and employ people from all walks of life, they are more productive, creative, innovative, and better at problem solving. 

#3: They can give you an insight into your customers. 

One in five Australians are living with a disability – and that includes customers from all businesses! 

Given that this is the case, companies may be missing a trick by not representing these people in their workforce. 

After all, how can you hope to understand and respond to the needs of diverse Australians, if you don’t have any of these people working for you? It would be like having a workforce with no women, or no ethnic diversity – limited, and really just plain wrong!

#4: They make your company more likeable. 

People like to work with businesses that are inclusive – and this goes for customers and employees alike. 

According to a recent study, a massive 87% of people say they’d prefer to give their business to companies that hire people with a disability. 

Similarly, many job-hunters actively seek out companies with diverse workforces, as they can feel confident these businesses don’t discriminate unfairly. 

Long story short: if businesses want to be an employer of choice, don’t be closed minded when hiring.

#5: Their good work ethic tends to rub off.

Going back to what we were saying before – people with a disability bring a unique set of skills to the table in the workplace. And the good news is, they can share their experiences and insights with their colleagues too!

But even more so, it’s been shown that having people with a disability in the workplace improves staff morale, team work, and the quality and speed of work that other staff produce! 

Keen to build a more diverse workplace? The government may even be able to help.

To help businesses include people with a disabilities in their ranks, the Australian Government offers a range of incentives to help make it easier. 

Under the Employee Assistance Fund (EAF), businesses can access incentives to help fund adjustments to make a workplace safer and more accessible to people with disabilities – whether it’s by adding a ramp, widening doorways, or installing some bigger screens. You can find out more at Job Access.


Our employment supports help people with a disability learn new skills, get some hands on experience, or find a job.


Read our other blogs

7 facts about disability in the workplace
5 things about invisible disabilities you need to know
Facts about being diagnosed with autism as an adult

 Find out more about disability services at House with No Steps

Tags: employment

10 benefits of mindfulness for mental health

Date Posted: Thursday, 09 March 2017 10:52
Posted By: Nadia Pocock

Our guest blogger, Melissa, takes a look at 10 top benefits of mindfulness for your mental health, and offers some simple exercises you can give a go yourself

Benefits of mindfulness for mental health

You have probably seen and heard the term ‘mindfulness’ across your Facebook page, in the news, and as a hot topic with your yogi friends.

But did you know that mindfulness can be helpful for your mental health including those with mental illnesses such as depression or anxiety? 

Let’s look at 10 top benefits of mindfulness for mental health, and also some simple techniques to try yourself!

So what is mindfulness?

Mindfulness is a form of meditation – it’s about focusing your mind’s attention on the present rather than letting it drift into concerns about the past or future. 

The goal is not to make your mind empty, but to let the thoughts come and go without getting caught up and obsessing over any particular one.

Mindfulness won’t get rid of the things that cause stress in your life. But, it allows you to observe a situation as if from a distance without strong emotions clouding your view. 

There are only two steps to mindfulness:

  1. Focus the mind
  2. When a thought comes into your mind - return to step 1

Sounds simple? If you give it a go, you may realise it’s not as simple as it sounds. But while it might take some practice - it can definitely be worth it!

Let’s check out 10 top benefits of mindfulness for mental health

Woman doing mindfulness

  1. It can help manage stress

    Daily life can be stressful – but mindfulness can help you be less vulnerable to stress and have greater emotional resilience. To put it more simply, it can help you ‘roll with the punches’ and adapt to stressful situations. Some people have said that it almost gives them a ‘mental armour’ in highly stressful situations.
  2. It can help manage the physical side to stress

    Stress is not just emotional, it can be physical as well. Mindfulness can help lower your breathe rate, heart rate and blood pressure, and also lower levels of stress hormones in your body. 
  3. It can decrease physical pain

    Many people don’t realise but pain and depression (and other mental illnesses) can be very closely related – in fact, pain can cause depression and depression can cause pain. For people with chronic or acute pain, studies have shown that mindfulness can help reduce their pain.
  4. It can help manage anger

    While everyone feels angry from time to time which is a healthy and normal emotion, some people can find their anger hard to manage. For those who do have difficulty with anger, mindfulness can help them manage these feelings.
  5. It can boost self-esteem and confidence

    Many people have niggling thoughts - ‘I’m not good enough!’, ‘I’m stupid!’ Mindfulness helps you question these thoughts - ‘Is it true?’, ‘Is it helpful?’. When you are mindful of your thoughts and feelings, you can start to trust what your brain and body really need and start valuing how amazing you are! We are all perfectly imperfect!
  6. It can improve your memory

    Some people with mental illnesses can experience memory loss or difficultly focusing. Practicing mindfulness has been shown to both improve a person’s memory and their attention.
  7. It can help with fatigue

    Fatigue (or exhaustion) is very common for people who have a mental illness such as depression. For those who experience insomnia, mindfulness can help combat this or improve the quality of a person’s sleep.
  8. It can actually change your brain

    Although it may actually sound far-fetched, studies have shown that mindfulness can actually bring about changes in the areas of the brain which are associated with positive mood and regulation of emotions.
  9. It can be a successful treatment for mental illnesses

    One recent study showed that mindfulness based cognitive therapy (which combines mindfulness with traditional cognitive-behavioural therapy) was just as effective at preventing recurrence of depression as anti-depressants were - even for those with a high risk of relapse. While these results are promising, many people benefit from anti-depressants and no one should stop taking medications without talking to their health professional.
  10. It can help you recognise damaging thinking patterns

    We all worry about the future or have regrets about the past, but mindfulness can mean you worry less about these. It can help you to tell apart thoughts which are helpful (those which can help you problem solve), and a nagging worry (that provides no benefit by focusing on it).

4 mindfulness exercises you can try today

Woman doing mindfulness exercises

There are lots of different mindfulness exercises – and which one you pick is up to you! But here are just 4 exercises you can give a go.

Remember that mindfulness takes practice – and it’s not always easy for everyone to master! But don’t give up and remember to be kind and gentle with yourself.

  1. Counting the breath

    One great mindfulness exercise you might like to try, is all about breathing.

    Find somewhere comfortable to sit with your feet flat on the floor, your back supported, shoulders relaxed, and arms resting in your lap. Close your eyes or soften your gaze.

    As you breathe in, say the number 50 in your head; as you breathe out say the number 49. Continue to count backwards from 50 - breathing in on the even numbers and breathing out on the uneven numbers.

    If you lose count or get distracted by a thought – don’t worry, just return to 50 and start again. If you get to 0 (well done!), also return to 50 and start again.

    Do this for 5 - 10 minutes.
  2. Guided meditations

    A guided meditation is when a narrator talks you through a series of steps or instructions – this may be focusing on your breath, or sensations in your body, or visualising an environment.

    They can be done in person with a therapist, in a group, or in your own home by listening to a recorded track.

    If you wanted to give this a go, there are some great online apps available – just download one on your phone or computer, press play, sit comfortably, and follow the instructions given.

    Headspace is a popular one which offers 10 free sessions for you to trial. Another online resource comes from Dr Ronald Siegal – assistant clinical professor of psychology at Harvard Medical school - which you can download at Mindfulness Solution.
  3. Just do the everyday

    It might sound strange, but you can actually practice mindfulness by spending time doing an everyday task such as digging in the garden or folding the washing.

    To do this, get rid of the distractions around you such as the TV or radio - and concentrate fully on your task.

    While you do it, take note of the sensations, the textures, the colours, and the sounds around you.

    Maybe your clean washing smells fresh, or the dirt from the garden is cool in your hands, or maybe you can hear birds outside.

    Allow yourself to get absorbed in the task you are doing.

    Every time you get distracted by a thought, just turn your attention back to those sensations, sounds, or smells around you.
  4. Get out and about

    This exercise is great for mindfulness, but, it also helps you get active!

    Get out of the house and go for a walk – but if you can, leave your phone, music, or any other distractions at home.

    Concentrate on what you can see, hear, and smell. Notice the sensations in your body such as your foot hitting the ground or the breeze on your skin.

    If a thought does creep into your head, just return your attention back to what’s going on around you or those sensations in your body.

Some important info to remember

After reading this you might be ready to start a mindfulness practice today and that’s great news! But it’s important to know that mindfulness is not for everyone.

If you have a severe mental illness, please talk to a health professional before starting a mindfulness program to see if it is right for you. Also, if any of these exercises worsen your symptoms, please consult your health professional before continuing.

It may be that mindfulness is not the right treatment for you at this stage or perhaps, such as for some people with PTSD, it is best done with a health professional guiding you and helping you with any emotions or concerns.

If you need to talk to someone about mental illness or a crisis in your life, please consider calling Lifeline on 13 11 14, beyondblue 1300 22 4636 or the Kids Helpline on 1800 55 1800 


Our author, Melissa Saville, is a Physiotherapist, mindfulness coach, and a Pilates and Yoga teacher. She was diagnosed with Multiple Sclerosis (MS) a few years back and practices mindfulness daily to help manage the fatigue and major depression which she experiences.

Read our other blogs

5 things about invisible disabilities you need to know

10 things not to say to someone with a mental illness

8 ways to keep cool this summer

Find out more about disability services at House with No Steps

"I think it’s just awesome to be in love"

Date Posted: Thursday, 02 March 2017 15:43
Posted By: Nadia Pocock

You may remember Leigh from a blog he wrote for us last year on looking for love and dating with a disability. Well you’ll be pleased to hear that he’s now found love and is in a committed relationship. We checked in with him to hear how things are going and find out who the lucky lady is. 

Leigh and Erin

I met Erin several years ago and we’ve had our ups and downs over the past year but we met again last year at a Dates and Mates Christmas party and it brought us closer together. Now we’ve been dating for over two months. 

She’s a beautiful lady, a very lovely person and I’m just in love with her. She’s in love with me and I’m in love with her, I see myself growing old with her. We like doing absolutely everything together especially posting photos together on Facebook.

For Valentine’s Day she came over to my place and we watched horror movies because she loves them as well. We also had a candlelit dinner for two and I cooked pasta bolognese. We’ve been bowling a few times, to the movies and she comes over to my place sometimes too. We’re just taking things one step at a time and moving forward in our relationship. 

I think one of the biggest barriers to people with a disability finding love can be their parents. I think it can sometimes be hard for parents to let go, especially when their son or daughter falls in love and wants to get married and have a kid. I believe everyone should be able to have kids if they want to, we all just want the same things that any other person would want. 

For me and Erin, I think it will be hard for them to let go of us a bit more, but our Mums both want the same things as us. They are fairly cautious but they are also willing to go the long yards with us. We’ve both got very supportive families but we’re taking things one step at a time, so we’ll deal with any barriers one step at a time also. 

In the future I see me and Erin potentially getting married, we just want to be husband and wife, it might take a few years but eventually we will get there. We’re thinking about moving in together as well, we’d love a really big house with extra bedrooms for when people stay over, and I think we will just go from there. 

I love everything about being in a relationship with Erin but my favourite thing would be her ringing me up every day to make sure I’m safe and well. She rang me up yesterday to make sure I got to Melbourne okay for a conference. She rings me every day to tell me how much she loves me and misses me. I think it’s just awesome to be in love and I’m falling more in love with her every day. 

My advice to others looking for love is just to be yourself. Become friends with people, get to know them and then go from there. Do not push people away because you need people in your life to love and honour. And you’ve always got to have trust in a relationship and stay true to yourself. 

I feel like love goes both ways, love is a trusting relationship. If you love a person and they love you then that’s all you need and that’s the most important thing. 


Read our other blogs

"Everyone has the right to fall in love": Dating with a disability

Sex and disability: the facts

Taboo questions about disability - part 1


Find out more about disability services at House with No Steps

5 things about invisible disabilities you need to know

Date Posted: Wednesday, 15 February 2017 12:49
Posted By: Nadia Pocock

Imagine having a disability but being called a faker, or lazy because people couldn’t ‘see’ it. Here are five things about invisible disabilities you need to know.

Invisible disabilities

Last year you might have read our blog where we tackled the disability parking debate - specifically how people with invisible disabilities are being targeted by parking vigilantes for ‘rorting’ the system.

But the discussion around invisible disabilities goes a lot deeper than the parking dispute. It’s a complex topic, but today we’re going to clear it up. 

Here are five things about invisible disabilities you need to know. 

Fact #1: Invisible disabilities are not rare.

Nope, they’re really not. Millions of Australians live with a disability – and a surprising 90% of these people have what is called an invisible disability.

As the name suggests, invisible disabilities aren’t easy to spot and you can’t ‘tell’ they have a disability just by looking at them. 

But there are many disabilities and conditions that are counted as ‘invisible’, such as MS, autism, ADHD, arthritis, brain injuries, mental illnesses, diabetes, epilepsy, cognitive and learning disabilities, chronic pain and fatigue… and the list goes on. 

Some invisible disabilities will become more obvious once you get to know a person a bit better, but many may be completely hidden unless the person chooses to tell you.

Fact #2: Some of your fav celebs have an invisible disability.

Did you know that some of the biggest stars that we all love and admire have invisible illnesses and disabilities?

It’s true – here are just a few examples: Selena Gomez has Lupus, Jack Osbourne has MS, Demi Lovato has bipolar disorder, Little Wayne has epilepsy, Morgan Freeman has a chronic pain condition (fibromyalgia), Richard Gere and Ben Stiller have had Lyme Disease, Halle Berry has diabetes, and Amanda Seyfried has anxiety. 

One thing’s for sure: this hasn’t stopped any of these people from carving out a successful career in their chosen fields. The best bit: they have chosen to speak openly about their conditions, helping to raise awareness and combat stigma around invisible illness and disability.

Fact #3: People with invisible disabilities are not just ‘faking it’.  

This one’s really important – because unfortunately  people with invisible disabilities are often accused of faking or imagining their symptoms - the phrases “but you don’t look sick” or "you don't look like you have a disability" are said far too often!

Imagine having a very real diagnosis, and being unable to convince people that you’re not just a ‘hypochondriac’,  or ‘being lazy’? Wouldn’t be nice would it. For these people, being met with skepticism that they’re legit is one of the hardest things of all. 

And what makes this worse, is it actually also stops people from talking about their disability or downplaying their own experiences – which just perpetuates the invisibility and stigma even more!

So while it can be very easy to think, ‘I had something similar and I just got over it’ or ‘it can’t be that bad’, remember there can be a lot more to what’s going on than meets the eye. 

Fact #4: Accessible toilets are not just for people who use a wheelchair.

There are actually so many reasons why someone who doesn’t ‘look like they have a disability‘ might need to use the accessible toilet – and they shouldn’t be given death stares for doing so, or feel like they need to explain themselves.

For example, maybe they have a colostomy bag (where bowel motions are collected in a disposable bag) and need the extra space and running water. Maybe they have an inflammatory bowel disease, and are finding it difficult to hold on. Or maybe they have a disability that makes balancing tricky and they need to use hand rails.

Whatever the reason – all these people have the right to use the accessible amenities. So before you roll your eyes next time someone skips the bathroom queue for the accessible toilet, just remember that it’s not just those with physical disabilities who need these facilities.

Also remember, while it’s not illegal to use one an accessible toilet if you don’t have a disability, if you don’t need to use one, leave them free for those who do.  

Fact #5: Same goes for accessible parking

Last year we wrote a whole blog on accessible parking, and boy did it stir up some opinions! For anyone that missed it - while it’s illegal to park in an accessible parking space without a permit (and you’ll be up for a hefty fine if you do) some people have taken it upon themselves to become parking vigilantes.

The issue here is that these vigilantes think they’re doing the right thing by catching people out, but they often misread the situation – shaming those with invisible disabilities of cheating the system despite having an appropriate permit.

But there are so many reasons why someone might need a more accessible space than a wheelchair (think: prosthetic limb, breathing difficulties, mobility issues, etc).

So don’t try and police the parking spaces yourself – leave it up to those who are qualified to do so. 

Share your own experiences with us in the comments section below!


Read our other blogs

The disability parking debate
10 things not to say to someone with a disability
Facts about being diagnosed with autism as an adult

Find out more about disability services at House with No Steps

Facts about being diagnosed with autism as an adult

Date Posted: Tuesday, 31 January 2017 12:38
Posted By: Nadia Pocock

What you need to know about being diagnosed with autism as an adult

Autism as an adult 

We often hear stories about people reading or seeing something about autism and thinking to themselves, “That’s me!”.

It's actually not uncommon for people to have gone through life without a diagnosis, some saying they just had a feeling they didn’t quite “fit in".

Let’s take a deeper look into receiving an autism diagnosis as an adult.

#1. No two adults with autism have the same story.

This is exactly why it’s called Autism Spectrum Disorder (ASD) – people experience it in their own unique way. 

Often adults who receive a late autism diagnosis have milder symptoms - previously this may have been called Aspergers syndrome which now comes under the ASD banner.

Growing up, people may have experienced:

  • Being unable to read facial or body language such as someone frowning.

  • Taking sarcastic comments literally, or not understanding playground jokes - when told to ‘get lost’ they may have literally tried to ‘get lost’.

  • Difficulty making friends, with some preferring to play alone or with older children or adults.

  • Narrow interests, and wanting to find out everything there is to know about a topic such as astronomy, dinosaurs, or cars.

  • Using a formal style of speaking such as saying 'beckon' instead of 'call'.

  • Sensory sensitivity such as to loud noise, bright lights, or strong flavours.

  • A dislike of change - instead preferring routines and rituals.

  • Avoiding eye contact when speaking, or at times staring at others.

  • Difficulty expressing needs, wants, and opinions, or using appropriate grammar and vocabulary.

As people move into their teens and especially into adulthood, they may find their lives are still impacted in different ways, but often people learn social skills and how to read social cues. Many grow up to have strong careers, marry, and have children.

#2. Many undiagnosed adults were just thought to be shy.

The nineties might be famous for Doc Martins, Troll dolls, and Britney Spears – but it was also the era when medical professionals made some major strides relating to ASD.

What these advances meant is we were now able to identify the subtler symptoms of autism much more easily, and at an earlier age.

This means that people who were undiagnosed a few decades ago may well have been today.

Instead, many people living with ASD were thought to have just been shy or introverted. Difficulty making friends, forming intimate relationships, reading people’s faces, and finding work, were put down to being antisocial, mean, or aloof. 

As a child, as well as being thought of as 'shy', people tell of being labelled ‘disruptive’, ‘difficult’ or ‘naughty’ because of their behaviour. 

#3. While you might feel that you ‘tick some of the boxes’ you don’t necessarily have autism

Autism is a complex disability, and even though you might be thinking these symptoms ring true of yourself or someone you know, it isn’t necessarily autism – there are many factors such as your environment and personality which shape who you are as a child and into adulthood.

Also, other conditions such as schizophrenia, OCD, anxiety, depression, intellectual disability, and sensory processing disorder can have similarities to autism. As it is so complex, specific guidelines are used to distinguish autism from these other conditions.

#4. There’s still no simple method to diagnose adult ASD.

While methods have been developed to diagnose children with ASD (through observation and questionnaires), there is surprisingly still no standard way to diagnose an adult. 

At this stage, diagnosis is often reached through a range of tests and interviews which look at a person’s intellectual functioning, social adaptability, communication skills, and a childhood history of ASD traits.

This means that diagnosis as an adult can be challenging.

For example, it can be pretty difficult to remember details from your childhood that would provide clues to ASD – and parents are often not around to help fill in the blanks. 

Many adults have also developed strategies to compensate for or ‘cover up’ their traits, so it can be difficult for an interviewer to note certain behaviours.

Plus, autism often presents quite similarly to other disorders (such as anxiety, depression and ADHD). This means it is often quite hard to define which experiences and symptoms may relate to ASD.

#5. A diagnosis may not change anything, BUT it also may… 

So, why would you bother trying to get a diagnosis? Well for a start, it can come as a relief to have an answer. For lots of people, it’s helpful just to know, rather than to suspect or assume. 

Some people have described having a ‘lightbulb moment’ where they finally understand why they feel the way they do. 

An official diagnosis can help you answer a lot questions you might have about yourself. It can also help those around you such as your family, friends or your employer, to understand the difficulties you experience, and how they can make things a little easier. 

There have also been many cases where people have been misdiagnosed with a mental illness or other disability, such as social anxiety disorder or OCD. Knowing opens the door to appropriate treatments and services (some of which you may not even know about). Your doctor can also help you tap into autism support groups and social skill training. All of which can help make the day-to-day that bit easier.

Some people believe a diagnosis won’t change anything and will be an unhelpful label, so why waste time trying to seek one out? And this is fine! Some adults with ASD are happy self-diagnosing and finding their own ways to adapt. It’s up to each person to decide whether a diagnosis would be helpful or not. 

So, if you do want to pursue the path of diagnosis, where to next?

Seeking a diagnosis is completely up to the individual but if it’s something you or someone you know would like to explore, the best first step is to talk to your GP.

Your GP will usually refer you to a clinical psychologist or psychiatrist for consultation. From here, you’ll generally be asked lots of questions about your childhood, experiences at school, and the present day. They may also do some psychological or psychiatric testing before making a formal diagnosis.

It's important to remember that autism is a complex disability and as far as we know there’s no single cause. Instead, it’s likely to be due to a combination of environmental and genetic factors.

Read our other blogs

6 facts about sensory hypersensitivity
4 things that don't cause autism 
6 tips for an inclusive kids party 

Find out more about disability services at House with No Steps

Tags: autism

8 ways to keep your cool this summer

Date Posted: Thursday, 12 January 2017 12:50
Posted By: Nadia Pocock

Summer is definitely here. For me, summer crawls into my life, leaving me exhausted and counting the days until the temperature drops and I can drag myself out of hibernation.

Heat and disability

My name is Melissa Saville. I am a Physiotherapist, Pilates and Yoga teacher; lover of pets, craft and music, and an avid baker. I was diagnosed with Multiple Sclerosis (MS) a few years back - a condition which affects the central nervous system.

Melissa

Before I was diagnosed with MS, I spent many years working as a neurological rehabilitation physiotherapist, training and educating people who had had spinal cord or brain injuries.  At the time, I definitely wasn’t thinking that one day I would have to take on board the advice I was giving to others, to manage my own neurological disease. 

The symptoms or effects of MS can vary greatly, but can include weakness, feelings of numbness or tingling, pain, fatigue, bladder and bowel problems, memory loss, depression, and other thinking difficulties. I struggle mainly with fatigue and major depression. 

MS, disability and the heat

Summer is definitely here. For some people this may bring to mind images of beaches, running through the sprinklers, ice cream dripping down sticky fingers, and thongs.

For me, summer crawls into my life - wreaking havoc, leaving me exhausted, collapsed under a fan, decorated in wet towels with a spray bottle hanging from one hand, and counting the days until the temperature drops and I can crawl out of hibernation.

Everyone is affected by the heat but people with disabilities can find it especially hard. 

Many people with MS experience a temporary worsening of their symptoms when the weather is hot or humid, or they have a fever. This is because higher temperatures further impair the ability for the brain and spinal cord's nerves or pathways to conduct the electrical impulses that tell the body and mind what to do.

Because of this, when it is hot I find myself more exhausted than usual, unable to do simple tasks without resting, and often become nauseous. Some days I’m well enough to forget I have this “monkey on my back,” but as the temperature rises this summer, that monkey has unpacked its suitcase and is here to stay.

For others with a disability, the heat can also be tricky for a few reasons - damage to the normal cooling mechanism of the body such as sweating; medications that increase heat or sunlight sensitivity; being unable to afford air conditioning; or needing support to stay hydrated or being aware of the need to do this.

Tips to stay cool

Because of my MS, I need to modify my life to be able to do all the things I love. For anyone struggling with the heat as I am - here are 8 things that I find helpful during summer:

  1. Wear a cooling device

    I like wearing a cooling scarf around my neck when I exercise or on those very hot days. I have a few of them so I can colour coordinate, of course! You can also get cooling hats, vests and even bras! To use them, you put them in water, and the gel inside holds cool temperatures for long periods of time - you can even put them in the fridge to make them extra frosty. Your pharmacist, physio or doctor may be able to help you find these.

  2. Stay Inside

    Sounds simple but fans and air conditioning are wonderful. I don’t have air conditioning so on really hot days I have been known to go to the movie theatre to enjoy the air conditioning there.

  3. Stick to or create your own shade

    Find trees, hats, lightweight devices such as umbrellas that can be clamped to the side of the wheelchair - whatever works for you to stay out of the direct sunlight if you have to go out.

  4. Staying cool at night

    Choose a lower thread count for your cotton sheets. Whilst you may equate high thread count with luxury, in fact, the higher the thread count, the more tightly knit and less breathable the fabric is. Consider your mattress choice as well - some memory foam or latex mattresses with a high content of synthetic rather than natural fibres will feel hotter. You can also find cooling pillows and a cooling bed pad that sits on the top of your mattress and prevents a build-up of body heat.

  5. Planning

    This is something I’m not always very good at - but avoiding the hottest part of the day (10-3pm) really does help. Whilst I would love to be an early riser, I’m not, so I save any exercise for the afternoon or evening when the sun’s not so hot. Also, because my brain can be a little foggy in the afternoon heat, I save important tasks for the mornings or evenings when I’m fresh.

  6. Wardrobe review

    My wardrobe is stocked with lightweight, loose-fitting clothing made from natural fibres (I like cotton or linen).

  7. Have some delicious, cool snacks on hand

    My freezer is stocked with frozen grapes, icy poles and frozen water bottles. I also have an empty water bottle in my car in case I forget to bring one with me to stay hydrated. The frozen ones are my favourite though, as I can cool myself down quickly by placing it on my wrists or neck.

  8. Yoga

    Huh? How could yoga possibly be used to keep me cool? I love to use a technique called Sitali or Sitkari breathing to cool me down and nearly everybody can do this. The practice involves curling your tongue, as if you are drinking in air through a straw (or resting your tongue behind your front teeth if you find this difficult), and breathing in deeply- allowing the air to move over your moist tongue, before breathing out through your nose.  I find this cooling not only for my body but also my mind which is good if I’m sitting in a traffic jam! 

There is no right or wrong way to keep you cool this summer. Talk to your physio, doctor or other health professional for more ideas and to help you decide what is going to work best for you or your loved one.

I hope these tips have got you thinking of ways to make your summer more comfortable!

- Melissa


Read our other blogs

Myths about multiple sclerosis (MS)

6 facts you might not know about therapy animals

10 things not to say to someone with a mental illness

Find out more about disability services at House with No Steps
Tags: health fitness MS

6 facts about sensory hypersensitivity

Date Posted: Wednesday, 14 December 2016 12:14
Posted By: Nadia Pocock

Hear the term sensory hypersensitivity, but not sure what it really means? Let’s take a look at what it’s all about – from common triggers, to practical management techniques.

Woman with sensory hypersensitivity

1. Sensory hypersensitivity isn’t people just being ‘touchy’.

While sensory experiences are often enjoyable (the taste of cake, or the smell of fresh linen) there are times when they can be too much.

People with hypersensitivity are oversensitive to things in their environment. If you’ve ever been irritated by the sound of a dripping tap or a shirt that’s too tight, or you flinch if someone touches your arm, you’ll have some idea of what sensory hypersensitivity feels like.

While these things may make you feel annoyed or tetchy, it can be quite different to those who are experiencing it day to day.

For some people, they may also experience sensory overload which happens when the sensory experiences around a person are too great for their nervous system - and they are not able to process or make meaning of it. As you can imagine, this can be very stressful, uncomfortable, and at times intolerable.

2. Some conditions and disabilities can make people more prone to sensory hypersensitivity.

While anyone can experience sensory hypersensitivity, there are some conditions that make people more susceptible – including autism, sensory processing disorders, post-traumatic stress disorder, fibromyalgia, and chronic fatigue syndrome. 

3. Many things can be triggers. 

As you may expect, loud noises and bright lights can be triggers for sensory hypersensitivity - and what can be a trigger for one person, can be very different from another. 

For example, the texture or flavour of food, the feel of fabric on the skin, the clatter of a spoon, the pitch of a particular song, or the smell of shampoo can all be triggers. 

“When I go into a crowded area my sinuses are overloaded with different aromas and I find it very difficult to breathe,” says Patricia. “One of the worst offenders are women who wear lots of strong perfume, another is cigarette smoke. Stale popcorn in the movie theatres is another aroma that turns my stomach.”

4. Everyone reacts differently.

Just as triggers can be different for different people, so can people’s responses. 

Some people may find it hard to concentrate or sit still. “Everything comes at me at once,” explains one House with No Steps customer. “Every sound is like someone is in my ear with a megaphone, and I can’t focus on anything. It all becomes a blur, like there are bees buzzing around in my head.” 

Others may feel irritated, restless, or angry. “It makes me feel like I have so many angry feelings and my boiler is going to explode,” described another customer. “I can’t sit still when I have a tickle in my boiler."

And for some, they may become anxious or panicked, and even freeze or be unable to talk, "For me the first thing that I notice is the increase in anxiety levels, particularly if I am in a crowded room,” says Hannah, a House with No Step customer. 

“This makes my muscles really tense up. Then if I do not get out, I suddenly feel as if there is an invisible wall between my brain and the rest of my body. I know and understand exactly what is happening to me and around me, I just cannot express anything. This cuts in just before I have a full blown panic attack. So I am a statue in a room full of people." 

5. Kids with hypersensitivity are not ‘just naughty’

Sometimes kids with hypersensitivity can seem fussy or even naughty to others – they may refuse to wear certain clothes or brush their hair, only eat soft foods such as mashed potato, cover their ears or hit their heads, or appear to have a ‘tantrum’.

But it’s important to know that this is not related to the child being naughty or poor discipline in any way. This is a child’s response to trying to resolve their distress.

6. There many ways to manage sensory hypersensitivity.

For children and adults, occupational therapy can help reduce sensory sensitivity, however there are also some techniques that people can use to manage things themselves. 

If you do start to feel overwhelmed, taking a break can help you to re-set and re-charge. 

It’s also a good idea to take note of what can trigger you – for example, if you’re sensitive to noise, you could try blocking background noises with earplugs, and listening to calming music or white noise instead. 

Or if crowds are problematic, try visiting restaurants and shops in non-peak times, and avoiding situations where you know you’ll feel out of control. 

One way to think about it is to put yourself on a “sensory diet” that’s suited to your personal needs. This involves reducing sensory experiences that are potentially harmful (such as using earplugs around loud noises), but still making sure you get enough ‘nourishment’ to your senses (such as enjoying soft music in the case of our hearing sense) – much as we’d aim for a healthy balance of foods.

And if in doubt, don’t hesitate to seek support from a professional.


Read our other blogs

6 tips for an inclusive kids party
4 things that don't cause autism 
6 facts you might not know about therapy animals

Find out more about disability services at House with No Steps

5 disability news stories that raised eyebrows this year

Date Posted: Wednesday, 07 December 2016 08:57
Posted By: Nadia Pocock

We've scoured social media to bring you the most talked about disability stories for the year 

top disability stories of 2016

With 2016 drawing to a close, we're taking a look back at the last twelve months – and the stories about disability that raised our eyebrows on social media for all sorts of reasons.

Here are the top five disability stories that have had the biggest reaction online this year so far…

1. That time UK’s Channel 4 put in a superhuman effort with their Paralympics campaign. 

On the heels of their wildly successful 2012 Paralympic trailer, this year UK’s Channel 4 took things up a notch with their ad to promote Rio’s Paralympic event. 

Dubbed ‘We’re The Superhumans’, this ad uses the power of humour to celebrate people from all walks of life – and shift society’s perceptions of disability. 

Broadening its focus beyond the sporting arena, the ad pays tribute to 140 people with disabilities, who are all conquering life in unexpected ways. From a blind pianist, to a pilot, to a mum changing her baby’s nappy using her feet, it’s a montage of amazing moments – all set to a pumping Sammy Davis Junior soundtrack (performed by a band of musicians from around the world, all with disabilities).

Viewed by millions of people, it was certainly one of our favourite ads this year at House with No Steps – check it out for yourself to see what all the fuss is about! 

2. That time Donald Trump offended someone (ok…it wasn’t the only time). 

Unless you’ve been living under a rock, you’ll be aware of some of the controversy Donald Trump has stirred up this year. He certainly raised a few hackles at a rally in South Carolina when he mocked New York Times reporter Serge Kovaleski – who has a condition called arthrogryposis that limits the movement of his arms.

When addressing comments made by Kovaleski, Trump waved his arms and spoke in an exaggerated manner in what appeared to be a deliberate dig. 

However, Trump later claimed that "I merely mimicked what I thought would be a flustered reporter trying to get out of a statement he made long ago. If Mr. Kovaleski is handicapped, I would not know because I do not know what he looks like…. He should stop using his disability to grandstand and get back to reporting for a newspaper that is rapidly going down the tubes."

The New York Times commented, "We find it's outrageous that he would ridicule the appearance of one of our reporters”. See how it all went down below. 

3. That time Lego unveiled its first figure with a disability.

For some time, Danish toymaker Lego has been under pressure to make toys that reflect real life more accurately – and last year, this reached boiling point thanks to the change.org #toyslikeme petition, which attracted over 20,000 signatures.

The good news? In June 2016, Lego responded by releasing its first ever mini-figure with a disability: a beanie-wearing boy in a wheelchair accompanied by an assistance dog.

Lego wheelchair figure

Launched as part of Lego’s latest CITY toy set, the new figure is accompanied by an ice-cream vendor, cyclist and picnickers.

Good stuff, Lego, we love your work!

Put it on your Christmas list and check it out here.

4. That time we welcomed a note-worthy new $5 bill.

By now, one of Australia’s shiny new $5 bills has probably found its way into your wallet, having been released in September this year.

But the exciting part of this story was there was much more to this new note than a cool new design – and it’s in a large part all thanks to Sydney teenager Connor McLeod, who launched a discrimination complaint with the Australian Human Rights Commission, and started a change.org petition calling for action on accessible currency.

As a result, the new $5 was developed to be accessible to blind and vision-impaired people. Each note features two small raised dots (about the size of a sprinkles on a piece of fairy bread), which will help it be more easily identified.

These tactile features have been integrated into the note itself using a new printing technology, so they shouldn’t get squashed or wear off (a feat much harder than you would think).

New five dollar note

So how did people with low vision cope in the past? Up until now, they had to ask a stranger to tell them a note’s denomination, use a clumsy machine to measure the note’s size, or use a smartphone app (however most smartphones have inaccessible touchscreens for those with a vision impairment).

You can therefore see why this is such a great step forward for people with vision impairments, and a testament to what perseverance can achieve!

5. That time a three-legged puppy won hearts, awards and job offers.

Back in 2014, German film students Jacob Frey and Markus Kranzler created a rather special short film for their film school graduation project. Entitled “The Present”, the film tells the story of a young boy who is given a puppy that has three legs.

While initially unenthusiastic, the young boy warms to the puppy and they go on to share a beautiful friendship (there is more to this story, but we’ll be careful not to spoil the ending).

Since its launch, the film has won hearts all over the globe, and won 59 international awards (and counting) – and it’s easy to see why the film has struck such a chord with so many people.

This year, the story again captured people’s attention, with the creators being offered jobs at Walt Disney and Pixar Animation Studios – showing off their talents by working on films such as The Good Dinosaur and the Secret Life of Pets.

Check it out below.

Which stories made you sit up and take notice this year? We’d love to hear from you – drop us a comment below.


Read our other blogs

The disability parking debate
10 things not to say to someone with a disability 
"Run Forest, Run!". Disability stereotypes in the media

Find out more about disability services at House with No Steps

Tags: Media

5 hot topics that got you talking this year

Date Posted: Friday, 02 December 2016 14:49
Posted By: Nadia Pocock

This year we wanted to get people talking about disability, so we put all topics on the table – here are our most hotly debated blogs from 2016!

Someone commenting on a top blog

This year we decided that we wanted to get people talking – talking about disability and about topics that are often seen as ‘taboo’.

So we decided to put all topics on the table – sex, language, parking permits, and more. And it sure got you guys talking!

As 2016 comes to an end, here are the most hotly debated blogs we posted this year.

Topic #1: The disability parking debate

International symbol of access

We were blown away by the response to our blog on disability parking – or more specifically, people with a disability being verbally abused, left nasty notes, thrown filthy looks, or having their cars keyed for rightfully parking in a disability space.

Hundreds of people commented on Facebook about their similar experiences - where others had assumed they were ‘rorting’ the system for parking in an accessible spot.

This was often because they weren’t using a wheelchair, or didn’t have a ‘visible disability’ - but in fact 9 out of 10 disabilities are invisible.

What you said…

Topic #2: My story living with a disability: Prader-Willi syndrome

Kate: my life with Prader-Willi syndrome

One of our most talked about blogs this year was written by our customer, Kate, who has Prader-Willi Syndrome (PWS).

Kate shared how this rare and complex genetic disability means that she has chronic hunger and an obsession with food.

“People with Prader-Willi syndrome have an unsatisfied hunger meaning they always feel hungry. They don’t have the signal that comes from the brain, the light-bulb going on saying, hey you’re full!”, she says.

"I have eaten out of bins before. And being around food in shopping centres is very hard. I have to admit, I have stolen food from shops when I didn’t have any money."

What you said…

Topic #3: 10 things not to say to someone with a disability

Man in wheelchair talking with girl

We know that it’s not always easy to know what to say to someone with a disability – but no matter how good the intentions, some comments can do more harm than good.

Hands up if anyone with a disability has ever been told, ‘It’s so good to see you out and about!’, or ‘“I know a great doctor/priest, I bet he could fix you.”

From the Facebook comments on our blog, ‘10 things not to say to someone with a disability’, we found that many people were putting their hands up high!

When we posted this article, the conversation sure got rolling with differing opinions of what should be left unsaid.

What you said...

Topic #4: Sex and disability: the facts

Sex and disability

Talking about sex is often seen as off limits, and even more so when it comes to people with a disability. 

But this year we weren’t shying away from this topic, publishing not one but two blogs: Sex and disability: the facts, and Sex and disability: the facts part 2.

People with a disability are often seen as asexual, or even hyper-sexual, and we were out to prove just how wrong that can be.

We know that having a disability doesn’t mean someone can’t enjoy a great sex life - whether it’s a long-term relationship or a fun fling. And by the Facebook comments on our blogs, we found that our online community agreed!

What you said...

Topic #5: Let’s end the R-word

End the rword

Back in March we asked our customers why people should not not use the R-word (retard), and the stories they shared sure got people talking!

When people use the R-word, it is often to insult people with a disability, or to call someone or something stupid - “You’re being so retarded”. 

What’s wrong with this? Leigh shared a story to explain how the R-word made him feel, “I was walking home one day, walking along minding my own business, and a car drove past and the guy yelled both the R-word and the f-word. It was really really hurtful.”

Although we feel the R-word is hurtful, derogatory, and reinforces negative stereotypes, the reaction to our blog online was split.  For House with No Steps, this just means there is more work to be done to be done.

What you said...


 Read our other blogs

10 things not to say to someone with a mental illness
4 things that don't cause autism
Online trolls targeting people with a disability

Find out more about disability services at House with No Steps
1 | 2 | 3 | 

Latest posts

Contact usContact us